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Sunday, 09 November 2014 00:00

Young and Living with Usher Syndrome

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Hey my name is Jodie, and I am any normal eighteen year old except having to cope with this cruel condition too!So here’s my story.. I had no clue what RP or Usher syndrome was until I joined secondary school, and had a friend in my year who was diagnosed with it, I learnt bits from her just by asking her questions about how she coped and what it was like. I knew she struggled in the dark a lot because she always asked someone to guide her around the school. I always thought to myself how brave she was…
Sunday, 09 November 2014 00:00

Dad's First Blog

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Well it's high time I tried to put down how I feel about Molly Jane Watt. I wear the badge with pride which says I've unconditional love for all of our children. Harry was born 26 years ago. Life changed very much once we became parents. Start of unconditional love. Jack born 22 years ago; then the delight of our first girl (Molly). She used to blow raspberries and we didn't realise for sometime that this was because she couldn't hear us so the vibration of these noises were her trying to communicate. She was diagnosed as severely deaf at…
Friday, 07 November 2014 00:00

The Day We Thought Our World Had Ended

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We are Jakes parents and this is our story.After a routine eye test that resulted in 6 months of appointments and tests (and the dreaded googling to find out what our son could have) the day arrived for us to get Jakes results at Grimsby Hospital, the date was 12 April 2012 a day we'll never forget and a day that changed our lives.  Firstly we saw a doctor that couldn't speak English very well and whose accent was so strong that neither Jake nor Trev could understand him (both are deaf), and I couldn't understand the majority of what…
Thursday, 06 November 2014 00:00

Our Journey - The Other Half

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Our Journey – The Other Half  This is quite a long story so be warned there is a bit to read here! Apologise to those who find staring at a screen for long hard but I just needed to get everything off my chest. I am Dan and I'm 21 years old and I am Molly’s boyfriend and here is my story. 2013 was a strange year for me, I had turned 20 and at the time I was working part time in Sainsbury. I had been through some personal stuff and wasn’t happy at all, I had no motivation…
Tuesday, 04 November 2014 00:00

Coming Out

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Coming Out It's always interesting to read how people with hidden disabilities tackle the whole "Coming Out" procedure. For me it was a procedure.  There was nothing natural about it. Having been born deaf that had never really been an issue in fact while I was young my hearing aids were quite the fashion accessory.  I chose bright coloured hearing aids and sparkly or funky coloured moulds each time I could change them. I was never embarrassed or shy about my hearing aids in fact when I was poorly and couldn't wear them I was devastated as I couldn't be…
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