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Wednesday, 15 July 2015 06:17

Access Illegally Denied - Guide Dog Owner Challenges

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I am writing this particular blog through sheer frustration and a desire to make things change. I was matched with Unis when I was 16 and over the past 4 years have been subjected to terrible discrimination simply because people either do not follow the law or have no respect for it or people like myself. Denying guide dog owners access to the majority of places is illegal yet it goes on all the time, sadly I feel there is little support, I often feel very alone and unprotected by a society that often appears not to care. Only the…
Friday, 10 July 2015 06:15

Let Me Be a Part

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(85 votes)
In a lot of my talks I often mention how grateful I am to have great family and friends. I could not imagine myself as a person without either, I really cannot. As I grew up I was very close to my parents and am lucky to have been well socialised. I have some amazing and happy memories, from days out to holidays. I always also looked forward to being with my friends at school. I have mentioned before I knew I was different pretty early on. Lots of my friends were walking to/ travelling to school independently, I was…
Thursday, 09 July 2015 06:14

Inaccessible Social Media Means Isolation

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Being diagnosed with a rare condition like Usher Syndrome is isolating. However, the Internet has been a lifeline for me. When times have been tough and I've needed a friend, an opinion, somebody going through similar to me I was able to look online and find a friend. It was so useful I was able to set up a group and find others with Usher Syndrome all around the world, also people with RP or deafness, we had somewhere to "meet" share experiences and support each other. When I look back I was lucky, my Mum had made quite an…
Friday, 03 July 2015 20:33

Tools to Navigate Usher Syndrome

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I wrote about my very early experience with my Apple Watch and I'm continuing to use it, experimenting with the apps that I am able to access and those I think can be helpful / useful to me as a deafblind, guide dog owner. My Apple Watch certainly isn't an expensive gimmick to me. Taptics is definitely the most amazing accessibility tool for those with dual sensory impairment. At the moment it is very rare to find anything with good accessibility for the deafblind.  Up until now it has been very much for the blind or the deaf and single…
Tuesday, 30 June 2015 20:31

Just Imagine

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Having Usher Syndrome means deafness with a progressive blindness and for some complete blindness. None of us can possibly know if we will be unlucky enough to lose all sight, however it is a consideration. I lost so much sight so quickly the thought of any further progression has been scary and something I choose not to think about it unless I have to. At the beginning of the year I found myself in that position, through no fault of my own, where was I going with my life. The profession I'd originally dreamt of was gone and now at…
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