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Monday, 01 February 2016 14:22

Mr Cane in the Rain

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Over the years I have become more and more anxious in and around London. I live about 40 minutes away from the city in a small town. Not a lot goes on in the town I live in.  Growing up I loved visits to London it really is fantastic, a City I love. However, as my sight progressively got worse, I became more stressed in crowded areas, that horrible feeling of claustrophobia. Moorfield Eye Hospital became the only reason I would go to London, a day at Moorfield Eye Hospital is not a pleasant day out.  At one point I…
Friday, 08 January 2016 14:19

A Life Without Headaches...Well, Almost

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I’ve been asked about my “Daith Piercing” by so many people I decided a blog of 'my experience' might be useful, so here goes:  Just over three months ago I began to seriously consider getting a daith piercing as I'd read several articles that suggested it may help prevent migraine.  If you've read my blogs you’ll know I have Ushers syndrome, a form of deafblindness, where the blindness is progressive due to a rare genetic condition called Retinitus Pigmentosa.  For me the progression in sight loss was very fast, I became registered blind within 2 years and today get by…
Wednesday, 06 January 2016 14:16

My Applewatch Experience 8 Months On

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I thought it fitting that my first blog of 2016 should be an update on "My Applewatch Experience" after 8 months and to mention the project set up to fund it for others. I’ve read lots of posts about applewatch, some very technical, some good and some bad. For me it has been more personal, more about accessibility and inclusivity and how it has changed my life, enhanced it in ways I didn't believe to be possible. Who would have thought a watch could bring independence, aid mobilty, reduce isolation and along with it confidence. In my first blog http://www.mollywatt.com/blog/entry/my-apple-watch-after-5-days I talked…
Thursday, 31 December 2015 20:52

New Year's Eve 2015 - Happy New Year & Thank you

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I'm going out tonight, it's New Years Eve and I, like most want to be out and to welcome the new year with my friends. Being out on one of the busiest nights of the year is quite a challenge, it's dark and it's crowded, two of the worse nightmares for anybody with Usher Syndrome and I can only do it because I have the most amazing friends who know my challenges, know my weaknesses and my vulnerabilities.   They also know how to make me feel indifferent and we have a great time. I am fortunate to live in…
Sunday, 08 November 2015 06:48

Social Media 'The Art of Communication' Fark09

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Last summer I was asked to write a blog for the Usher Coalition for the first ever Usher Syndrome Awareness Day. I thought long and hard and decided the best way was to use social media to show the world what this condition “looks” like, the irony of a hidden disability! http://www.usher-syndrome.org/our-story/blog/ushlookslikethis-own-the-equinox-day-4.html I am particularly proud of this awareness project as it highlighted lots of things and reached a huge audience, particularly on Twitter, I’m told it was trending at one stage. I had realised the power of social media after one of my first ever blogs http://www.mollywatt.com/blog/entry/my-apple-watch-after-5-days which had interested so…
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