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Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


Linx2Life

Linx2Life
For me having Usher Syndrome means I have had to make full use of my residual hearing. As I write this blog there is no cure for Usher Syndrome and nothing to help or enhance my blindness, however, there is amazing technology that exists for deafness. Over the past years Cochlear Implant has been amazing for the profoundly deaf, particularly children who are bilaterally implanted from very young.   Their ability to access sound is amazing and as a result we have a new generation of profoundly deaf who’s first language is speech. Speech definitely leads to independence and inclusion in society. I have recently been reading horror stories about the deaf who need or rely on interpreters and the cost cutting for this. I can only imagine how devastating and isolating this must be. My parents made the early decisions for me and I will always be grateful of their...
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6174 Hits

Inspiring the Next Generation - Larchfield Primary School

Inspiring the Next Generation - Larchfield Primary School
I was asked by Berkshire Vision (previously Berkshire County Blind Society) to do a small presentation to a local school on Wednesday 23 September. The children had been asked to design a remote control accessible to all. It was my pleasure to talk to this group of children about accessibility for those not just with deafblind, but those with other disabilities. Children are so receptive to this sort of challenge and I was impressed with the many ideas they came up with. It dawned on me that these children are our future and that they can and will make a difference to people like myself with their fresh and intuitive ideas. I have visited schools around the country and discussed Usher Syndrome, anti bullying and the importance of inclusion, understanding and acceptance of those of us who are ‘different’ for whatever reason. I suffered at the hands of bullies and also...
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  5158 Hits
5158 Hits

Hear No, See No, Techno

Hear No, See No, Techno
I recently read about somebody I know who has Usher Syndrome and had got into a very scary situation. Having Usher Syndrome this sort of thing is very easily done. An accident as simple as getting on the wrong bus in the dark, being put off the bus with directions to safety but you didn't understand the directions and finding yourself all alone in the dark bearing in mind you are completely blind in the dark, terrifying. Being deafblind is often very disorientating at the best of times and lots of us experience dizzy spells or vertigo, often seems part and parcel of the condition and being lost or feeling lost adds to the anxiety lots of us can feel when out and about particularly in unfamiliar areas. Similar happened to me before I had guide dog Unis and I was petrified, fortunately for me I had my cane, must have...
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  7250 Hits
7250 Hits

Amazing Memories Made for My 21st

Amazing Memories Made for My 21st
I was determined to enjoy my 21st I arranged a few events with my friends for my special Birthday. The countdown would be good and the actual day special as I was jetting off to Miami with the family, spending two nights in Miami followed by two weeks relaxing on the beach in Daytona. This is the first holiday I gate crashed and paid for my own flight! I love the US so there was no way I wasn't going, the fact it was my Birthday was going to make the holiday very special, I just didn't realise how special! I've been extremely lucky to have frequently visited the US growing up. You've probably read somewhere on my website I am all about creating memories and my 21st Birthday would definitely be memorable, regardless of my quick deteriorating vision. Memories happen regardless. There is a large list of places I'd love...
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5980 Hits

Communication not Assumption

Communication not Assumption
Until I was 12 I believed I could do most things, why not, I was deaf but with hearing aids could hear "ok". The one thing I remember upsetting me back then was I couldn't hear on the telephone so couldn't speak to my grandparents who had moved far away.  It did make communication an issue sometimes, group settings, noisy environments, bad acoustics did make life more difficult but I did cope quite well lipreading in most situations but definitely always easier on an one to one. Of course there would have been a few things I couldn't do but in the main I felt capable of most things. To my surprise my disability was more of an issue to the outside world than to me. This very strange assumption that firstly I would use sign language to communicate was the first barrier I came up against followed by the assumption...
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8757 Hits