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Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


Playing Pad Pro Pencil

Playing Pad Pro Pencil
As a naturally creative person I was particularly excited about the arrival of the iPad Pro and Pencil but I did have the usual reservations that go with somebody with only 5 degrees of vision and big screens. When I opened the box and saw the size of the screen I was very apprehensive as big is not necessarily better for somebody with tunnel vision, especially a tunnel as small as mine. On taking the tablet from it’s box I was surprised at how light it was and how much a bigger version of my iPad air. Switching on the iPad Pro the screen clarity was profound, even to me and it was big! Strange as it might sound, as poor as my eyes are I notice differences, I guess because I have to look so carefully and scan everything it is rare for me to miss something new or...
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4503 Hits

Social Media 'The Art of Communication' Fark09

Social Media 'The Art of Communication' Fark09
Last summer I was asked to write a blog for the Usher Coalition for the first ever Usher Syndrome Awareness Day. I thought long and hard and decided the best way was to use social media to show the world what this condition “looks” like, the irony of a hidden disability! http://www.usher-syndrome.org/our-story/blog/ushlookslikethis-own-the-equinox-day-4.html I am particularly proud of this awareness project as it highlighted lots of things and reached a huge audience, particularly on Twitter, I’m told it was trending at one stage. I had realised the power of social media after one of my first ever blogs http://www.mollywatt.com/blog/entry/my-apple-watch-after-5-days which had interested so many people, I know because of the Applewatch but I am proud to say over 225,000 read that blog and all will have seen the words Usher Syndrome, deafblind and accessibility which really pleases me. Social Media also has the power to bring otherwise isolated people together but...
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  4363 Hits
4363 Hits

The Dark is the Devil - Halloween

The Dark is the Devil - Halloween
As a young deaf person, I always despised Halloween.  Now thinking back I was always petrified of the dark.  Winter nights out with the family meant me being literally attached to one of my parent's arms whilst my friends excitedly raced off in front of me.  I loved the thought of dressing up but not of going out. I remember the outdoor funfairs not being any fun for me unless I was in a secure seat with a seatbelt on or a ride where adrenaline took over School discos at primary school were always in the evenings.  I would look forward to the discos, I loved to dance but for me the best part was having sweets with my friends in a well lit classroom! I would spend most of my time avoiding the low lit hall with it’s flashing lights and loud music. My coping strategies kicked in even...
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  5195 Hits
5195 Hits

Depression, Dealing with Demons

Depression, Dealing with Demons
I was 17 years old, my first year in 6th form, studying for A levels. I'd been pushed around, made to feel different when I just wanted to fit in, was coming to terms with going from deaf to deafblind, to being a guide dog owner and coping with all the usual things teenagers deal with. I had an untold number of professionals involved in my life and looking back now only one of those people actually tried to understand me and sadly I only saw her once a term. At my real time of need I was bullied, not just by my peers but also by the staff. I have always used my creative ability to make a point and my communication skills should have made me an easy person to support, strangely the staff spent most of their time telling me what my needs were instead of listening...
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  6128 Hits
6128 Hits

Linx2Life

Linx2Life
For me having Usher Syndrome means I have had to make full use of my residual hearing. As I write this blog there is no cure for Usher Syndrome and nothing to help or enhance my blindness, however, there is amazing technology that exists for deafness. Over the past years Cochlear Implant has been amazing for the profoundly deaf, particularly children who are bilaterally implanted from very young.   Their ability to access sound is amazing and as a result we have a new generation of profoundly deaf who’s first language is speech. Speech definitely leads to independence and inclusion in society. I have recently been reading horror stories about the deaf who need or rely on interpreters and the cost cutting for this. I can only imagine how devastating and isolating this must be. My parents made the early decisions for me and I will always be grateful of...
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  5866 Hits
5866 Hits