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Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


Accessibility, my Nemesis

Accessibility, my Nemesis
  We really need to get beyond the assumption that all deaf people hear nothing and all blind people see nothing. There are those with no sight at all and there are people with no hearing at all, however there are lots of variations in between. People born blind are different to those who go blind and the same with deafness, all need to be considered for accessibility. I'm no expert, have just learnt these things since going from deaf to deafblind as a result of Usher Syndrome. Being born deaf means I was brought up a visual learner and even though registered blind, not partially sighted, I choose to use my 5 degrees of useful vision to access information. I accept that at some stage I might need to transition to voiceover, I am fortunate, I could access voiceover with my linx2 hearing aids, with my previous Phonak hearing...
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5258 Hits

Growing Knowledge means Growing Accessibility Kit!

Growing Knowledge means Growing Accessibility Kit!
I recently blogged about my preference of twitter and a few reasons why.  Following on from those comments I have been very fortunate to meet with some amazing people since using Twitter as a networking tool to raise awareness of Usher Syndrome, it’s challenges and what we need to access the world. One of many people who made contact with me after my applewatch blog was the inspirational Maneesh Juneja.   Maneesh who is a Digital Health Futurist would tag me in various posts he thought might be useful to me and, excuse the pun, opened my eyes to both interesting and useful posts enabling me to research new things I might never have known about and to access and consider how these things could work for people with Usher Syndrome, deafblind, blind and also those becoming hard of hearing or visually impaired. The main advantages I have found here...
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5300 Hits

My Enabling "Accessibility Kit"

My Enabling "Accessibility Kit"
I was recently asked to trial the new ReSound Multi Mic.  It is a tiny piece of kit with bluetooth connectivity to my Linx2 hearing aids, iPhone and applewatch so absolutely perfect accessibility for me. Multi Mic can be used by being attached to one person, by being placed on a table enabling brilliant accessibility to small group conversation.  It can also be used as a microphone up to 25 metres. I collected the Multi Mic from the guys at ReSound on my way to an event.  As usual I was given time and a full explanation as to how it works then had my hearing aids paired to the equipment and told it had been fully charged so ready to go. On this occasion my Mum had her chauffeur hat on and was driving me to Manchester so I asked her to wear the Multi Mic, switched on I...
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5458 Hits

The Missing Linx2

The Missing Linx2
A few months ago I had what could have been a complete nightmare for me, I lost one of my treasured Linx2 hearing aids. I was distraught, I felt completely unbalanced, unnerved and worse I feared how I would replace the missing aid. Firstly I asked for help in searching for the tiny hearing aid in all the places I'd been along with my parents pulling apart our house as my poor sight is not very helpful when it comes to finding things, especially things so small. I was devastated it couldn't be found and to this date has not been found. I contacted ReSound and advised them I had lost one of my hearing aids and before I could ask about a replacement they told me I should not feel so awful and to visit asap for a replacement. I cannot tell you how relieved I was. A day...
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4101 Hits

My San Francisco Adventure

My San Francisco Adventure
San Francisco had been on my long list of places to visit and I was lucky enough to go on a girls only adventure with Mum and my younger sister Lily. Going away and out of my comfort zone can be very stressful, whether I am alone, with Unis or with others. To deal with the anxiety I often feel I use my travel experiences as a mission to find who and what is accessible in my world.   Whilst I’m concentrating on the good, bad and acceptable it gives me something to think about rather than feel anxious. Our journey begins at Heathrow Airport and our flight with Virgin Atlantic.  Virgin were advised I am deafblind on booking and that safety instructions in large print be made available.  They were also advised I am most comfortable to board first to avoid the crowds which are uncomfortable. I was escorted...
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5894 Hits