A A A Accessibility A A A A

Blog

Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


The future will be bright if the future is Accessible!

The future will be bright if the future is Accessible!
I didn't like to think too far ahead, however I was determined to make something of my life. Thanks to amazing support at Primary School and later at College I made it through my A levels and to University. Sadly University turned out to be very similar to senior school - something of a non event, big promises of support but failure to follow through. Again let down by a system that failed in their duty of care, failed to provide accessibility or inclusion and enough really is enough. Enough fighting, of feeling anxious, misunderstood, unimportant time to move on and do something different. I spent two months soul searching could I physically and mentally deal with another two and a half years of fighting for support, fighting to be given access to a course I had for the first three months been denied. This time my GP was to...
Continue reading
Rate this blog entry:
2297 Hits

Just Imagine

Just Imagine
Having Usher Syndrome means deafness with a progressive blindness and for some complete blindness. None of us can possibly know if we will be unlucky enough to lose all sight, however it is a consideration. I lost so much sight so quickly the thought of any further progression has been scary and something I choose not to think about it unless I have to. At the beginning of the year I found myself in that position, through no fault of my own, where was I going with my life. The profession I'd originally dreamt of was gone and now at 20 years old I needed to reconsider what I could do being deaf and already very blind. Most would assume "Deafblind" what can she do?  Well, you'd be surprised at the things I can do! I doubted myself a lot after diagnosis, always questioning the whys and how's. The one...
Continue reading
Rate this blog entry:
4097 Hits

Smartly Aided

Smartly Aided
I feel incredibly humbled to have been offered to try a pair of the most up to date hearing aids now known as "Smart Aids". I want to thank ReSound for their kindness and I'd like to give something back, not just to them but to the Usher Community of which I am just a small part. To ReSound I want to share my experiences good and bad so that they can perhaps take into account my findings as somebody with Usher Syndrome and that they can continue to improve the technology available to people like me. To others with Usher Syndrome I'd love to help fund these via The Molly Watt Trust but without serious fundraising or some very generous donors it can't happen, I will however keep plugging away to try and help. What I can do is use my experiences to at least advise those with Usher...

Continue reading
Rate this blog entry:
15478 Hits

Awareness, Accessibility and Technology = Independence

Awareness, Accessibility and Technology = Independence
I should make people aware of the type of blindness associated with Usher Syndrome is called Retinitus Pigmentosa (RP). The characteristics of RP usually start with night blindness, followed by a progressive loss of peripheral vision, so tunnel vision and what we see varies in different light conditions too and not just light to dark but from room to room, outside to inside in brightness and glare, environmental changes that just happen, yes, it is a nightmare! Of course I'm no expert on these things so the following is me talking about myself and just an outline for those reading my blog. Again everybody with the condition is different, I was very unlucky to have been registered blind or I should say registered Deafblind at just 14 years old and being already deaf it was the most distressing time of my life - that's possibly a blog for another time....
Continue reading
Rate this blog entry:
11866 Hits