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Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


Growing Knowledge means Growing Accessibility Kit!

Growing Knowledge means Growing Accessibility Kit!
I recently blogged about my preference of twitter and a few reasons why.  Following on from those comments I have been very fortunate to meet with some amazing people since using Twitter as a networking tool to raise awareness of Usher Syndrome, it’s challenges and what we need to access the world. One of many people who made contact with me after my applewatch blog was the inspirational Maneesh Juneja.   Maneesh who is a Digital Health Futurist would tag me in various posts he thought might be useful to me and, excuse the pun, opened my eyes to both interesting and useful posts enabling me to research new things I might never have known about and to access and consider how these things could work for people with Usher Syndrome, deafblind, blind and also those becoming hard of hearing or visually impaired. The main advantages I have found here...
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My Enabling "Accessibility Kit"

My Enabling "Accessibility Kit"
I was recently asked to trial the new ReSound Multi Mic.  It is a tiny piece of kit with bluetooth connectivity to my Linx2 hearing aids, iPhone and applewatch so absolutely perfect accessibility for me. Multi Mic can be used by being attached to one person, by being placed on a table enabling brilliant accessibility to small group conversation.  It can also be used as a microphone up to 25 metres. I collected the Multi Mic from the guys at ReSound on my way to an event.  As usual I was given time and a full explanation as to how it works then had my hearing aids paired to the equipment and told it had been fully charged so ready to go. On this occasion my Mum had her chauffeur hat on and was driving me to Manchester so I asked her to wear the Multi Mic, switched on I...
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The Missing Linx2

The Missing Linx2
A few months ago I had what could have been a complete nightmare for me, I lost one of my treasured Linx2 hearing aids. I was distraught, I felt completely unbalanced, unnerved and worse I feared how I would replace the missing aid. Firstly I asked for help in searching for the tiny hearing aid in all the places I'd been along with my parents pulling apart our house as my poor sight is not very helpful when it comes to finding things, especially things so small. I was devastated it couldn't be found and to this date has not been found. I contacted ReSound and advised them I had lost one of my hearing aids and before I could ask about a replacement they told me I should not feel so awful and to visit asap for a replacement. I cannot tell you how relieved I was. A day...
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My ears, my eyes, my Apple Watch

My ears, my eyes, my Apple Watch
My whole life has always evolved around technology, starting with analogue hearing aids at 18 months in order to access sound. I cannot imagine life without hearing aids, I've had them forever.  School was full of speech therapy, small group work and one to one with my teaching assistant, not forgetting my trusty radio aid that I needed to hear the teachers voice without background noise. I had to wear it in a bum bag that Mum kept as trendy as possible but there was no pimping the hideous wires that connected my hearing aids to the radio aid, I hated it but accepted it because even back then I knew if I couldn't hear I was excluded from normality. At 20 I have been through several generations of hearing aids as technology has progressed.  I remember being in year 3 when I was one of the first in my...
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Smartly Aided

Smartly Aided
I feel incredibly humbled to have been offered to try a pair of the most up to date hearing aids now known as "Smart Aids". I want to thank ReSound for their kindness and I'd like to give something back, not just to them but to the Usher Community of which I am just a small part. To ReSound I want to share my experiences good and bad so that they can perhaps take into account my findings as somebody with Usher Syndrome and that they can continue to improve the technology available to people like me. To others with Usher Syndrome I'd love to help fund these via The Molly Watt Trust but without serious fundraising or some very generous donors it can't happen, I will however keep plugging away to try and help. What I can do is use my experiences to at least advise those with Usher...

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