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Advocating for those living with accessibility needs. Sharing experiences, raising awareness and understanding of how assistive accessible technology enhances and enables those in need.


The Dark is the Devil - Halloween

The Dark is the Devil - Halloween
As a young deaf person, I always despised Halloween.  Now thinking back I was always petrified of the dark.  Winter nights out with the family meant me being literally attached to one of my parent's arms whilst my friends excitedly raced off in front of me.  I loved the thought of dressing up but not of going out. I remember the outdoor funfairs not being any fun for me unless I was in a secure seat with a seatbelt on or a ride where adrenaline took over School discos at primary school were always in the evenings.  I would look forward to the discos, I loved to dance but for me the best part was having sweets with my friends in a well lit classroom! I would spend most of my time avoiding the low lit hall with it’s flashing lights and loud music. My coping strategies kicked in even...
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Inspiring the Next Generation - Larchfield Primary School

Inspiring the Next Generation - Larchfield Primary School
I was asked by Berkshire Vision (previously Berkshire County Blind Society) to do a small presentation to a local school on Wednesday 23 September. The children had been asked to design a remote control accessible to all. It was my pleasure to talk to this group of children about accessibility for those not just with deafblind, but those with other disabilities. Children are so receptive to this sort of challenge and I was impressed with the many ideas they came up with. It dawned on me that these children are our future and that they can and will make a difference to people like myself with their fresh and intuitive ideas. I have visited schools around the country and discussed Usher Syndrome, anti bullying and the importance of inclusion, understanding and acceptance of those of us who are ‘different’ for whatever reason. I suffered at the hands of bullies and...
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Just Imagine

Just Imagine
Having Usher Syndrome means deafness with a progressive blindness and for some complete blindness. None of us can possibly know if we will be unlucky enough to lose all sight, however it is a consideration. I lost so much sight so quickly the thought of any further progression has been scary and something I choose not to think about it unless I have to. At the beginning of the year I found myself in that position, through no fault of my own, where was I going with my life. The profession I'd originally dreamt of was gone and now at 20 years old I needed to reconsider what I could do being deaf and already very blind. Most would assume "Deafblind" what can she do?  Well, you'd be surprised at the things I can do! I doubted myself a lot after diagnosis, always questioning the whys and how's. The one...
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Awareness, Accessibility and Technology = Independence

Awareness, Accessibility and Technology = Independence
I should make people aware of the type of blindness associated with Usher Syndrome is called Retinitus Pigmentosa (RP). The characteristics of RP usually start with night blindness, followed by a progressive loss of peripheral vision, so tunnel vision and what we see varies in different light conditions too and not just light to dark but from room to room, outside to inside in brightness and glare, environmental changes that just happen, yes, it is a nightmare! Of course I'm no expert on these things so the following is me talking about myself and just an outline for those reading my blog. Again everybody with the condition is different, I was very unlucky to have been registered blind or I should say registered Deafblind at just 14 years old and being already deaf it was the most distressing time of my life - that's possibly a blog for another time....
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